position and liaison for parents of children with rare diseases
http://www.reddeamor.org/padres-en-argentina
Source: http://www.reddeamor.org/
We are a group of Mothers who have experienced the terrible feeling of loneliness and helplessness that leads to discover that our child or loved one is a child with special needs. We
anguished face of the unknown and we are overwhelmed with questions unanswered. With great effort, we inform, learn, meet the needs of our children and the treatments available to help improve their quality of life.
we know what it feels like, we decided to put our experience to others.
offer our learning in this way and a helping hand to find the medical and therapeutic resources necessary to ensure that your child can develop their own capacities to the fullest. Many times there is more to be done even if you feel, think or tell you otherwise.
His life experience may also help others. For networks that serve to support and share information.
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